Comments on: EXPERIENCES

By: Jules Xiomara

Jules Xiomara — Sun, 17 Aug 2003 11:50:37 +0000

Taty: It’s a place where we can all benefit. And there is so
much I’m learning — even after 22 years of this
disease. couple of years ago, and was taking neurontin which
helped tremendously. But, since I have moved away from
all the stresses in my life, I have cut back from 3
pills a day to 1 and I’m not even sure I need that. I
think I was suffering from the anxiety and panic
attacks. Anyway, I know everything is under control now
without that stress I was under. really growing; I was having computer problems and was
gone for a couple of days and WOW I couldn’t believe
the number of new people we had. Great job,
Taty!

By: Neva Marjory

Neva Marjory — Sat, 09 Aug 2003 14:48:05 +0000

Hi Cheryl, Hi everyone. to see that Diabetes complications didn’t do you any
harm. A good part of my childhood years I was out of
control, and then when I tried to get my sugars under
control, my sugars were like being on a roller coaster. I
guess, all this did cause me some complications. But,
most of my complications are under
control. blood clot in my leg in 1999, I spent two weeks in the
hospital for that. I was told I had pneumonia, and while
doing some tests they found out that I had a blood
clot. Wow, that was scary. I went through some
depressing moments after I came home, it took me months to
recover from that emotionally, and even now I still find
myself thinking about that.
lazer surgery for my eyes since I was a kid, but I was
always afraid of having more problems with retinopathy,
I’m so happy that I haven’t had any more problems
with that. I have neuropathy, and I’ve experienced
pain because of it, but not as severe as some people
that I’ve heard about. My kidneys were starting to
have problems when I was a teenager but there has not
been any changes for the worse, which I’m thankful
for. emtying so slowly was, and sometimes still is, a big
problem for me. Autonomic Neuropathy caused this problem.
These days, with the changes in my stomach medications,
things seem to be better. such nice people to share all this with, it does help
to have a place to come to, where we can all help
and support eachother. being a part of this club, I love being able to share
my experiences with all of you. Love to all.

By: Jules Xiomara

Jules Xiomara — Fri, 08 Aug 2003 23:06:28 +0000

Now that’s a positive attitude! I am glad
everyone is posting because I realize just how lucky I am;
22 years of being diabetic and half of that not
taking care of myself the way I should have and my body
shows no signs of damage from the disease (knock on
wood) — my eyes are fine, low cholesterol, every other
test comes back fine. When I start to feel depressed,
I can just come in and read some of these posts
from those much worse off than I. I commend all of
you.

By: Neva Marjory

Neva Marjory — Fri, 25 Jul 2003 16:30:49 +0000

Hi Tom! see that you have a positive attitude, that’s very
important. very brave! I wish you the very best on this and hope
that you are chosen for the islet transplantation
studies.

By: Neva Marjory

Neva Marjory — Sun, 20 Jul 2003 08:33:13 +0000

Tom, like you have a positive attitude about it, and since
your first time at being a “guinea pig” is one where
you were pleased with the help you received - I bet
this comes out even better for you! of everyone here I want to say “Thank you” - I know
you are doing this for yourself too, but you will be
able to help all of us, by teaching the researchers.
UGH!! Talk about “learning from the past” - I also
remember that you had to give a “pint of blood” to the
first Glucometers for them to get a reading! HAHAHA!!
Isn’t it amazing how far we have come!! luck & Best Wishes!